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The Chronic Illness Warriors

Category Archives: My life

Fibro Fog: The Struggle is Real

17 Sunday Apr 2016

Posted by Cassandra Carr in My life

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Fibro Fog: A type of cognitive dysfunction reported by many people with fibromyalgia. Also sometimes referred to as brain fog, its symptoms include difficulty with concentration, memory deficits, and confusion. The reason for the changes in brain function with fibromyalgia is not clearly understood.
www.medicinenet.com/script/main/art.asp?articlekey=125458

Fibro Fog is something everyone with fibromyalgia suffers from time to time, at the very least. In addition, people with other invisible illnesses like lupus, MS, RA experience it too. The last sentence in the definition above, that the reasons for fibro fog cannot be understood, is vital. Like many components of invisible, chronic illness, since no one knows exactly what it is or what causes it, they can’t stop it. They can only minimize the effects of it. One effect is fibro fog, and hopefully you’ll find some good tips to deal with it.

Yeah, this is pretty realistic…

So how does someone living with it make things better?

  • Do tasks that don’t require intense concentration. Cleaning, laundry, taking a walk, doing some organization of a space you use that’s gotten out of control. I am addicted to these collapsible organizers. They’re all over our house! And if I don’t need an organizer for some reason, it folds right up.
  • Rest. In my experience, fibro fog happens most when you’ve been doing too much. Whether that means a nap, a bath, reading – do whatever appeals to you the most. If you’re going to take a bath, you might as well make it a detox bath. All you need is a handful each of baking soda, magnesium flakes (or if those bother you, epsom salts), and some essential oils if you like them.
    I use lavender. Others use peppermint to really sweat out the toxins, but if you’re going for relaxation, lavender is a better choice. By the way, the link for the magnesium flakes says to use the entire bag for one bath. Maybe that’s why some people report a tingling sensation. I think that’s overkill, but you do what you think is best.
  • Use your phone’s calendar and memo apps. I put an appt in my calendar as soon as it’s made – like actually standing there at the reception desk and typing it in. Make sure you put reminders in. I use an hour before and a day before. I also copy my husband so he knows where I’m supposed to be.
  • Make routines. I have a designated spot for my purse and a hook for my keys right inside the door from the garage. I put my keys on that hook as soon as I enter, so I know that next time I need them I won’t have to search for them.
  • Stop it with the multi-tasking. It will only make the problem worse. Women are hard-wired to multi-task, but when fibro fog sets in you simply can’t. If that means you don’t make dinner because you had to fill out registration forms for your kid’s summer camp, so be it. And don’t let anyone make you feel guilty about it. In this day and age of microwaves and drive-thrus, no one should starve. I keep a lot of food in the house so if I don’t feel well, hubs can make himself and our daughter a meal if need be.
  • Eat as healthy as you can and drink water. This seems like a “duh” thing, but I know when I’m experiencing fibro fog I can’t make a decision about what food I want, much less get up and make it or swing through a drive-thru. Places with a drive-thru are your friend. I just finished a salad from Panera Bread. 660 calories of real food – good food, like avocados and chicken and hard-boiled eggs.
  • Watch your meds and their effect on you. It’s possible your dosage needs to be tweaked in order to prevent some of these issues. Don’t take it for granted that the amount you take of any med is the right dosage. Doctors are not perfect. You may have to insist on a dosage, but you know your body better than anyone else.
  • Use those small bursts of energy to do things that require intense thought or multi-tasking. Understand, though, that you’re probably done for the day after that. Set expectations with your spouse and children so they know you’re going to need a nap or to chill in front of the TV.
  • Make sure your environment isn’t contributing to your problems. When I got diagnosed with fibromyalgia, I started systematically eliminating chemicals from our house. All of the 409/Windex-type products were replaced by a vinegar citrus cleaner. Our dishwasher detergent and various laundry products are also completely organic. I believe there are recipes for at least some of those things in a prior post.
  • If you like this sort of thing, do things that stimulate your brain. Crossword puzzles, word searches, Words with Friends, or any other fun activity that keeps your brain engaged but doesn’t require the same kind of thinking that leads to fibro fog are your best choices.
    I color. I am obsessed with adult coloring books. These are my favorite ones, and I own no less than ten different books. I have found these are the best colored pencils, fine-tipped markers, and gel pens. I can use whatever I want depending on my mood. It may seem like a lot of writing utensils, but trust me, when you color every day like I do you get bored with sets of 12. I even have metallics in all of these.
    When the pain gets too bad or I’m too tired to do anything else, I pull out one of my books and color. Because the pictures are so complex, you have to concentrate on them, but again, it’s not the sort of brain work that would throw you into an episode of fibro fog. They really help with the pain, too, because you’re thinking about the picture, not how much you’re hurting.
  • Take a look at the over-the-counter (OTC) supplements you’re taking. Are you getting enough magnesium, a well-know deficiency in fibro patients? What about vitamin D? B12? There’s a huge list of supplements you can take, and some do seem to help with fibro fog. Try some out and see if they work for you. A word of caution: many manufacturers make supplements specifically to help with fibro fog. However, look closely at their ingredients. Many are just a compilation of things you already take.
    Suggestions:
    – Omega-3 fatty acids, whether from real food like salmon or supplements. This is the brand we use.
    – Stevia, when used as a sweetener in place of pretty much every other sweetener. Stevia helps regulate your blood sugar. These are the little packets, they also have liquid, which is very popular too.
    – Vitamins B, C, and D – hopefully a good multi-vitamin would take care of these needs, but you might need to supplement, especially Vitamin D, which fibro patients are almost always low on.

Wow, that was a lot of information. Sorry about that, but I wanted to be sure I was covering everything I could think of for how to fight back against fibro fog. You *can* do it. If nothing else, say to yourself, “You survived through this before, you’ll survive now. You’re okay, and you don’t have to be perfect.”

Do you have any other ways of coping with fibro fog? Tell me in the comments section!

Pill box

Health Enterprises Acu-Life Deluxe Pill Organizer – I use one of these to keep my meds organized. When FibroFog hits, I don’t have to worry about losing track of my meds.

Detox Baths – why you should take them

03 Sunday Apr 2016

Posted by Cassandra Carr in Disease Management, My life

≈ 1 Comment

Much has been made lately of the concept of the detox bath. Some people like to make you think a detox bath will cure what ails you (which we all know isn’t true), and others suggest them as one more cog in your illness management wheel. I’ll explain the concept of the detox bath, why you should consider making them a part of your week, and how to actually go about drawing one.

The concept: Certain compounds naturally pull toxins from the body. In a detox bath, you combine a few and then let them do their job.

Why you should take them: Our world is filled with chemicals and pollutants. Even the healthiest eater is still breathing in the air around them. Detox baths help your body fight back against the things trying to do you harm. Besides, most of us love taking baths. Personally, I’ll take a bath over a shower any day. Showers tire me out and my balance isn’t always great in the tub, but it’s much harder to slip and slide when your body is more or less horizontal.

How you make a detox bath: The “recipes” for detox baths are endless, and you can find several on my Detox Your Body board. The basic detox bath only needs two things, though (besides you and water) – baking soda and either epsom salts or magnesium flakes. To find out where to get these items, check out my Product Reviews page.
Turn on the tap to the hottest temperature you can stand, since the point is to sweat out the bad stuff, much like a sauna. Plug the tub and then grab your baking soda. Generally speaking, you want about one-half cup per bath. I put some into my hand and then dump it directly into the bath toward the end where the tap is.
Now you need your epsom salts or magnesium flakes. Magnesium flakes may cause your skin to tingle, and not everyone likes that sensation, so epsom salts are often used in place of them. Again, dump some into your hand and scatter it in the same place as the baking soda. Swish everything around with your hands to help combine the additions, and you’ve got yourself a basic detox bath.
There are also variations, like adding lavender or peppermint essential oil. Not only will your bath smell lovely, but both help with that whole “sweating” idea. And like I said, countless recipes exist, and I’ve pinned at least a couple dozen to the Pinterest board I mentioned above.

What do you like to add to your detox baths? Did I miss anything? Let me know in the comments!

The Fatigue Factor and 5 ways to beat it

27 Sunday Mar 2016

Posted by Cassandra Carr in Disease Management, My life

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It seems like every chronic illness comes with a few of the same components, including debilitating fatigue. For some people, it’s not that bad and a short nap each day takes care of their needs. But others find they literally cannot get out of bed because their energy is so zapped.

To fight back against fatigue, you need a plan. Below are five ways to overcome fatigue, or at least make it easier to handle.

  1. Accept that fatigue is now a part of your life. It won’t go away. You can fight it, but chronic means all the time. You aren’t going to wake up one day bouncing with energy and be able to sustain that. Once you accept that you aren’t the person you once were and need to let go of old expectations without guilt, you’ll be able to really tackle the fatigue factor of your illness.
  2. Although insomnia is common amongst people with chronic illnesses/pain, try to get some decent sleep at night. Whether that means going to bed earlier, using meds to help you get to sleep, or taking a bath with magnesium (which helps you feel sleepy), is up to you. Even four or five hours of sleep at night helps.
    I bought a ridiculously expensive bed that I’m paying off over something like three years because it’s more comfortable and my quality of sleep has improved with it. Not everyone can afford that, but you can put down the book, turn off the TV, put the phone on the charger, lower the lights, and other things that signal your body that it’s time to sleep.
  3. Schedule at least one nap into your day. Don’t wait until the fatigue catches up with you and your body starts going into self-shutoff mode. Even if you work outside the home, even if you have children to care for, you’re setting yourself up for a crash/flare if you try to push beyond your limitations. Take a nap in your car during lunch, find a quiet conference room you can commandeer for a little while – do whatever it takes to give your body a chance to get through the rest of your day.
    If you’re home, figure out when you can nap. Nap when your small children do. If you have older kids, tell them not to disturb you when the bedroom door is closed unless it’s an emergency. Ask your spouse to run interference for you or take the kids out for lunch and a few errands.
  4. Be aware of your weekly calendar. For instance, if you have a wedding to attend on a Saturday, you know you’re going to be tired. In that case, try to take a nap that day if you can. If you are unable to, do the best you can. Borrow some spoons from the next day (if you don’t understand the concept of spoons in chronic illness, go here for an explanation), when hopefully you won’t be as busy and you can recharge your energy stores.
  5. Remember that rest doesn’t always equal sleep. Lying in bed reading, binge-watching Netflix, or simply closing your eyes on the couch while your favorite music plays softly counts as rest. Being in a horizontal position and not expending energy are the keys here.
    You aren’t resting if you’re cleaning your house or making dinner or shuttling kids to soccer practice or running errands. Your family must accept that you’re doing the best you can and that they may have to lower their expectations for what a “clean” house looks like or learn to like frozen pizza for dinner.
    Use friends – perhaps you drive to soccer practice one week and they drive the next, or they can bring you a meal every now and then when they know you’re flaring. Friends and family sometimes just need to be asked. Many of them won’t understand what you’re going through or what they can do to make your life easier, but if you can swallow your pride and your guilt, oftentimes they’re more than happy to help.

Obviously this is not a comprehensive list, and as fatigue IS such a huge part of chronic pain and illness, I’ll be revisiting this topic in future posts. If you have a strategy for combating fatigue, let me know down in the comments. Conversely, if you’re at your wit’s end and don’t know how to get the rest you need, comment. The community of chronic illness warriors is very supportive and we’ll try to help you find a solution.

Hire me!

22 Tuesday Mar 2016

Posted by Cassandra Carr in My life

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One thing I’ve learned over the years is that I can write. Not just “Hey, that’s readable!”, but pretty decent stuff. I write both fiction, as you’ll see on the About Me page, and nonfiction, on a variety of subjects.

I’ve been freelancing for years for both small and large publications, and I’d love to write something for you. Chronic illness is such a misunderstood subject and anything I can do to help inform people or make them more aware of the particular challenges of sickness and changes that come with it.

To find out more, send me an email at contact@chronicillnesswarriorsite.com.

My 3 favorite products for chronic pain and illness

22 Tuesday Mar 2016

Posted by Cassandra Carr in My life, Product Reviews

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For years I’ve been battling pain. For years I’ve wondered what I could do to end my agony. Finally, I found three products I could rely on time and time again. I want to share the information with you.

  1. A heating pad: I use a king-sized (large) Sunbeam heating pad. I’ve been through several over the years. The one I use now has four settings: warm, low, medium, and high. It also has an auto-off, which is important, especially if you tend to fall asleep (and don’t we all?) with them still on.
  2. A Nutri-Bullet: The blender I love! One of my first purchases after my fibro diagnosis. I use it to not only make smoothies, but also to chop small objects like nuts and seeds. I add several supplements and serums to my smoothies; I’ll discuss those in another post.
  3. A Tempurpedic bed: This was a purchase my husband and I didn’t take lightly. But one of the things that aggravates chronic pain is pressure points, and they get irritated by spring mattresses. Ours have no spring and are individual beds, so each of us can make adjustments as needed. Both the head and the foot can be raised or lowered at will.

What are your favorite products to deal with your chronic illness and pain? Tell me in the comments.

Tentative Posting Schedule

20 Sunday Mar 2016

Posted by Cassandra Carr in My life

≈ 1 Comment

My plan is to post on Sunday, Tuesday, and Thursday. Sunday’s post will be new information or personal experiences, Tuesday will talk about products or resources I find and want to tell you about. Thursday will be a recipe for food or a homemade product.

Note this is my plan. But as anyone with a chronic illness knows, even the best intentions don’t always work out. If I’m not able to post on a planned date, I will do what I can to get it online as soon as possible.

Please be patient. As I mentioned, I am populating this blog from scratch, and it will take some time to get all the information onto the proper pages.

A little about me and why I’m doing this…

17 Thursday Mar 2016

Posted by Cassandra Carr in My life

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I’m a romance and action-adventure author. In May 2015 I was on Facebook, doing my normal daily tasks there to promote my books, talk to readers, etc. I came across a graphic one of my friends had shared of the symptoms of fibromyalgia and a blinding lightbulb went off over my head.
I’d been battling migraines, shoulder issues, fatigue, and a bunch of other things, thinking they weren’t related and I just had a lot wrong with me. Nope. After testing for other things, my doctor diagnosed me with fibromyalgia. I went on Gabapentin, and then began my journey to live the best life I can. Now I want to share everything I’ve learned with all of you.
One of my first priorities was getting rid of all the toxic cleaners and such that were all over my house, despite the fact I’d made an attempt to go organic at least a year before my diagnosis. I got recipes for homemade dishwasher and laundry detergent, and a few beauty products. Then I did research and concluded the Paleo diet was the right one for me and my family, and went about removing processed foods from the house. I learned more about fruits and vegetables. I bought a NutriBullet, and learned how to make delicious smoothies.
Since then I’ve gone even further, greatly expanding my cache of essential oils, learning how to make soap, and trying a ton of remedies for my various aches and pains. Some have worked, some have not. See my Product Reviews and Go Natural pages for more information about the changes I’ve made. Also, be sure to check out the Resources page. I’m building this blog from the ground up, so the information will be populated as I’m able to, but I hope to help as many people as I can and will work hard to make your diagnosis of a chronic illness or chronic pain less scary.
By trade I was a market researcher before I became an author, so research comes naturally to me. I’ve learned and formed hypotheses, tested them, and made conclusions on scores of topics related to fibromyalgia, chronic illness, and invisible illness. Now I’d like to share that knowledge with you. If there’s something specific you’d like to hear about, let me know in the comments!
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