DISEASE MANAGEMENT: Chronic Illness Gift Guide, part 1

DISEASE MANAGEMENT: Chronic Illness Gift Guide, part 1

I’ll be writing some posts over the next few weeks about things you can give to your loved one battling chronic illness. One post would be quite long, which is why I’m splitting it up. If you have any suggestions, feel free to leave a comment and I’ll research the idea.

These are products and services that relate directly to helping manage chronic pain and illness. They have been hand-picked with exactly that in mind.

  1. Lavender eye pillow: $17.95 on the day this post released. This is made from organic fabrics and filled with flax seeds. You can put it in the freezer for even more effectiveness. These can be a Godsend for those times when you need to retreat and relax to ease up headache pain. 516jyblpowl-_sl1018_
  2. Bed reading pillow/lounger: $39.99 This is an Amazon bestselling product. It’s made with a velour cover and contains foam, which moves around some to shape around your body. It is 18 inches in height, which is a good size for a woman or a smaller man. my daughter uses one and loves it.
  3. Quell Wearable Pain Relief: $249.00 I haven’t personally tried this, but it sounds pretty good to me. I like anything that might reduce my dependency on drugs. There’s a Bluetooth connection and an app on your phone to help monitor pain levels, sleep, etc. The FDA has approved it for use both during the day and at night. At its most basic explanation, it appears to be a TENS system. Many of us have those, but this does sound revolutionary if you read reviews and the product information. 41gojk99jgl
  4. Ancient Minerals Magnesium Lotion: $18.60 This is an 8 oz bottle. That doesn’t seem like much, but a little goes quite a long way. Magnesium is a mineral chronic illness sufferers are notoriously deficient in, and lotion is one of the fastest and most effective ways to make sure your body takes in enough magnesium each day.
  5. Equinox Memory Foam Pillow: $34.95 This pillow measures 24×16 inches, and has cooling technology built in, which really helps on those days when your body temperature is going through the roof. Each pillow comes with a washable cover made of hypoallergenic and dust mite resistant fabric.

Stay tuned for the next installment of the gift guide, and again, let me know if you have any suggestions for additions!

 

MY LIFE: Dealing with depression and anxiety

MY LIFE: Dealing with depression and anxiety

 

This, in my opinion, is a universal topic. Many people who don’t deal with chronic illness and pain DO find themselves struggling with depression and/or anxiety. I’m going to give some tips about things I do to try to alleviate my own depression and anxiety. Your mileage may vary, and I am by no means a doctor. Please, please do go see your primary care physician if you’re having trouble coping. Don’t go it alone.

By the way, I have a Pinterest board for Chronic Illness Depression and Anxiety. As I said above, you can feel depressed or anxious without experiencing a chronic illness. The pins may still help.

  1. Accept that some days you’ll feel nothing, and others you’ll feel everything. That’s how it is with depression and anxiety. You may even feel everything and nothing at the same time. Your brain is playing tricks on you. The more you fight it on this, the worse it will get.
  2. Try not to feel bad about how you perceive others feel. This is an incredibly hard thing to do. But remember this — you’re not in anyone else’s shoes. Don’t project your own feelings of inadequacy on them.
  3. Someone else, no matter how much they love you, can bring you out or talk you down from your feelings. We all wish they could, but the fact is, they’re YOUR feelings, YOUR experiences. You may or may not be able to change your feelings, and don’t rely on others to either.
  4.  Accept that your depression and anxiety are rooted in the rational, and at the same time, that they’re not. More than that, even, we can’t turn it off, no matter how irrational. Depression and anxiety aren’t intermittent things — at least, not usually.
  5. Don’t expect others to understand, show patience, etc. They don’t get what you’re going through. It’s not that they don’t want to, they simply can’t. People may think you’re lazy, a hypochondriac, or something else. That’s their problem, not yours.
  6. Your decisions will waffle, depending on the day, hour, or even minute. What does this mean? An example: there’s a holiday party coming up. All your friends will be there. You know you’ve had a good time in the past so you’re looking forward to it. Then — BOOM — you’re not. Instead, you’re looking for excuses not to go. Remember, it might not be rational and you might know it, but that doesn’t change the fact you feel it. Some people say you should force yourself to do things you don’t want to, but I say — listen to your body (or brain), at least to a point.
  7. Related to number six, there will be times you have to be heartless. This is necessary to protect yourself. You might miss an important event, like a wedding, bt consider this. If you went and then lost it, as we all know we could, what would happen then? Again, people wouldn’t understand. They won’t understand you missing such an important event, either, but you need to come first.
  8. Understand you’re battling your own mind every waking minute. Now accept how awesome you are for keeping going. Is there anything more difficult than fighting your own mind? Fighting your body, but that’s another post.
  9. If you’re feeling up to it, set a goal to get even one thing done. If you don’t make it, don’t beat yourself up over it. The laundry doesn’t ALL have to be done now. You are allowed to hightail it to the checkout registers even if your list isn’t completed. The world will not end if you can’t do it. But if you CAN do it, give yourself credit. Be proud of your accomplishments, no matter how small you or someone else may think they are.
  10. Eat and drink. This sounds elementary, but how many times are you lying on the couch or in bed, hungry or thirsty, and yet not wanting to get up even for the five minutes it would take to reheat a meal? One of the things I do is go somewhere to get food. Yes, it’s not the least expensive way to handle this problem, but at least you’re eating. And getting out of the house to boot, even if it’s only for fifteen minutes. To a depressed or anxious person, drive-thrus are awesome. We have five places within ten minutes of my house that have drive-thrus. I have my favorites, but anything will do in a pinch. Just make sure you keep eating and drinking. (NOTE: My husband just brought me a homemade breakfast sandwich. Sometimes they really do understand. I didn’t ask for it, but he knew I needed to eat.)
  11. Snuggle with a child, a spouse, a pet — whoever is willing to cuddle (though I don’t suggest strangers, lol). Even a fairly brief, twenty or thirty second hug releases endorphins. And this is going to sound weird, but if no living thing is available, find a nice big pillow and wrap yourself around it. In my experience, that still helps.
  12. Remind yourself that you are enough, in whatever form you take on any given day. You don’t have anything to prove, even if those around you make you feel like you do. Repeat after me: I. AM. ENOUGH. You can even expand on this. I am a good spouse. I am a good mother. I am a good (whatever occupation you have, if you work).
  13. Figure out what you need. Why are you feeling sad today? Is there something you’re missing? If you can put your finger on it, do it/get it if you can. Watch a movie. Read a book. Get some ice cream. Go to the mall. As long as it matters to you, it’s right. By the same token, where’s all this anger coming from? Do you need to rail at the world? Then do it. What other emotions are weighing you down? Identify them and how to help yourself, or ask someone to help you.
  14. Do something you’re good at. You might be able to fight back against yourself if you have a fabulous cake you baked or a pretty piece of art you created. It doesn’t matter what you’re good at, and even if you don’t succeed, give yourself credit. You did it. You tried.
  15. Don’t bottle all your feelings up. Even if you scream at no one in an empty house, you might feel better. It doesn’t help you or anyone else to keep it all inside.
  16. Forgive yourself and those around you. You’ll feel better if you let things go. It’s extremely difficult, I realize that, believe me, but holding onto bad feelings or grudges isn’t good for anybody, least of all you.
  17. Get rid of toxic relationships. This goes back to the “heartlessness” thing. You can avoid contact with almost anyone, even if you have to work extra hard to do it. It’s worth your mental health to not let toxic people interrupt your well-being.
  18. Recognize that shame is a big part of your life. Guilt, shame, whatever you want to call it, will bombard you every day. Acknowledge that, but fight it. Know it might be irrational, know it may not go away. Just do what you can and that’s good enough.
  19. Identify easy things that make you feel better. Maybe it’s listening to music, or eating a piece of your favorite candy. Again, it doesn’t matter what you do. If it helps, you’ve won. Even a tiny battle helps win the war.
  20. Lastly, when all fails, watch cat videos. Seriously, how can you not like this?

 

What coping methods do you use? Tell me in the comments!

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RECIPE: Three Smoothies to Remember

RECIPE: Three Smoothies to Remember

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These are three basic smoothie recipes, but they cover a lot of distance, so to speak. Everyone can use a brain boost…and an immunity boost…and a great green smoothie! I’d omit the coconut water from these recipes, but that’s just me and my abhorrence of all things coconut.

Tons of smoothie recipe exist – any search on Pinterest makes that fact clear. With all these recipes to wade through, it’s nice to have three in one place. My smoothie Pinterest board has hundreds and hundreds of smoothie recipes, and sometimes it’s just too much to try to find one. The brain booster will come in handy as I write my latest work in progress. 😉

 

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DISEASE MANAGEMENT: Fibromyalgia Relief Essential Oil Blend

DISEASE MANAGEMENT: Fibromyalgia Relief Essential Oil Blend

 

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Look at what I found! The way I look at things like this is – can’t hurt to try it, right? In case you find the graphic difficult to read, here are the ingredients:
25 drops EACH of…
chamomile
lavender
wild orange
marjoram

Combine in a glass bottle with your favorite carrier oil and shake. Massage into skin as needed.

I am an active Pinterest pinner. I have a board for Living With a Chronic Illness and another for Essential Oils. Check them out for more information like this!

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RECIPE: All-Purpose Citrus Vinegar Cleaners

RECIPE: All-Purpose Citrus Vinegar Cleaners

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Found on the Yummy Life blog:

Did you know? According to the Environmental Protection Agency, indoor air can be 10 times to 100 times more polluted than outdoor air. One of the culprits is common household cleaners emitting toxic fumes.

Vinegar is a wonderful and cheap product to use for all things cleaning. About the only thing I don’t like about it is…you guessed it…the smell. But I have a solution! Add citrus fruits and/or essential oils so the scent of those helps mitigate that strong vinegar odor.

Citrus rinds, in addition to helping with the scent of the cleaner, also lend oils that help the cleaner be more effective. Also, a very important note: you SHOULD NOT use any cleaner containing vinegar on porous surfaces like granite countertops.

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Don’t go out and buy citrus fruit just for these cleaners. Eat the fruit, which is good for you, and then recycle the rinds as part of these recipes. Also, you can freeze citrus peels, spices, etc until you have enough of what you need. That helps eliminate the potential waste in your kitchen. Recycle! Reuse!

When peeling the citrus, use only use the peel & pith, not the juice & pulp inside.

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Cleaner #1: Orange Spice
Add cinnamon sticks, whole cloves, and almond extract to a jar or lidded container. Fill with orange peels. Add enough vinegar to cover the peels. Put the lid on and let it sit for 2 weeks (or up to 1 month). I like to label my lid with the exact ingredients I used. That way I will know how to replicate or tweak the formula to my liking in the future. I use blue painters tape for labeling–it sticks well yet removes easily without leaving behind a gummy residue.

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Cleaner #2: Lemon Rosemary
Lemon peels, rosemary sprigs, & vanilla extract. Same procedure as above.

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Cleaner #3: Lime Thyme
Lime peels and thyme sprigs. Same procedure as above.

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Cleaner #4: Grapefruit Mint
Grapefruit peels and mint sprigs (or substitute mint extract or essential oil). Same procedure as above.

Strain the scented vinegar.
After at least two weeks of soaking time, use either of these methods:

  • Put a funnel in the jar and then rest a wire strainer in the funnel. Pour the vinegar solution through the strainer.
  • Screw a strainer lid onto the top of the jar and pour it through the funnel into the jar.

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Store the strained, scented vinegar in a sealed jar or container. Be sure to label it, especially if you’re making more than one kind. It should be good to use for up to a year. This is a concentrate that should be diluted with water before using it.

Dilute and add more scent, if needed.

  • Pour some of the concentrated scented vinegar into a spray bottle. Add 1/3 cup scented vinegar to 2/3 cups of water. I’m using a 16 oz. (2 cup) spray bottle here, so I used 2/3 cups scented vinegar and 1 1/3 cups water.
  • Put the nozzle on the spray bottle and give it a shake. Spray a small amount and smell. Keeping in mind that the vinegar scent will fade once the cleaner dries, if the vinegar smell is still too strong for you, add 1/2 to 1 teaspoon of extract or 4-5 drops of essential oil. For example, I added 4 drops of orange essential oil to mine to intensify the orange scent and increase its cleaning power.

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ALL-PURPOSE. I use this natural cleaner on everything except my granite countertops.

  • Wood. For dusting wood furniture, mist a cloth or duster lightly with the scented vinegar mixture. A little goes a long way. It’s great for cleaning wood floors, too.
  • Stainless steel & appliances. It cuts grease and leaves a shine. I spray it directly on my appliances and sink and wipe with a microfiber cloth or sponge.
  • Glass. This does an amazing job on mirrors, glass, and even eye glasses. If you’ve been using Windex type glass cleaner, you may need to add a few drops of liquid dish detergent to your spray bottle to help remove the film left behind from the Windex. After a few cleanings, the liquid detergent won’t be necessary. (Tip from Ron and Lisa Beresin their informative book Let’s Green It!)

You can find citrus essential oils here if you choose to use them. Other ingredients you might need: cinnamon sticks, cloves, Mason (or in this case, Ball) jars, glass spray bottles – healthier than plastic, funnels, small strainer.

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RECIPE: Pumpkin Breakfast Bread

RECIPE: Pumpkin Breakfast Bread


 

Breakfast is important for chronic illness warriors. Many of us follow a Paleo diet, and eggs can be pretty boring when they’re the foundation of breakfast. This bread is Paleo and grain-free.

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260-Calorie 2-Minute Paleo Pumpkin Microwave Muffins

Calories: 260 calories
Fat: 17 grams
Carbs: 22 grams
Protein: 11 grams

Ingredients
* 1 egg
* 1/3 cup pumpkin puree
* 3 tablespoon ground flaxseed meal
* 1 1/2 teaspoon honey
* 1 teaspoon coconut oil
* 1/2 teaspoon pumpkin pie spice (dash each of cinnamon, nutmeg, ginger, cloves)

Directions
1. Break egg into large microwave-safe coffee mug. Gently beat with fork.
2. Mix in pumpkin puree, honey, coconut oil, pumpkin pie spice, and flaxseed meal.
3. Microwave on high for two minutes, but watch to make sure your muffin doesn’t rise over the top of your mug.
4. Either eat your muffin out of the mug, or flip it over on a small plate and sprinkle some extra cinnamon on top.

You’ll notice these say two minute, microwave. What could be better than that?

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PRODUCT REVIEW: Himalayan Salt Lamp

Product Review: Himalayan Salt Lamp


 

I bought two of these about eight months ago. They’re an excellent value at just over $20 each. They’re bright and show a lot of depth and texture, which makes the lamp much nicer to look at. It’s hard to say how much they’ve helped my health, since I use them in conjunction with about a million other things to treat my fibromyalgia.

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From Amazon’s website, here are the reported benefits of using Himalayan Salt Lamps:

Hand-Carved Lamp Provides a Soft Glow
The lamp is made from salt crystals from the Himalayan Mountains. Unlit, the crystal’s rough-hewn, irregular surface looks pink. When lit with the included 15-watt bulb, it gives a warm amber glow. You can even change the color of the bulb to give a different hue to the lighting area.

Use the lamp as a gentle nightlight, or to create a romantic mood. Whether in a child’s room, near the television or computer, or in your office, the lamp, sitting on its round neem base, provides a natural touch.

Salt Crystal is a Natural Air Purifier
The Himalayan Natural Crystal Salt Lamp also works as an air purifier. When lit, the lamp emits negative ions that fight against positively charged particles that cause you to feel stuffy and sluggish. The lit salt crystal clears the air naturally of allergens like smoke, pet dander, pollens, and other air pollutants. It dilutes odors so that you can breathe easier. People with asthma often find it helpful in reducing their symptoms. You can keep the lamp lit for as long as you like to maintain this purifying effect.

Care and Sizing Information
This lamp is very easy to clean–just wipe the outside surface with a damp sponge and dry with a paper towel. Because each crystal is natural, dimensions and weight vary.

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These are two of the more “designer” or “architectural” looks for these lamps. Some people don’t like the big block style I have, and there are choices if that’s the case.

Most of the recommendations I’ve seen about using these lamps suggests you have one in each room where you spend a lot of time. My daughter has one (another model because she wanted smaller crystals that looked like burning embers), I have one like this in my bedroom, and the other in the living room.

In my room, this lamp sits right next to my essential oil diffuser. And my million different essential oils. Maybe I’m exaggerating a little. But as I look over there from my Tempurpedic bed, there are a LOT of them. And as you can tell, my bedroom is a conglomeration of products designed to help me manage my fibromyalgia. I’ve been lucky to be able to acquire many things to assist in fatigue/energy and pain level management. I hope the same for you.

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Nourish Joints and Muscles
Promotes Mobility and Flexibility

 

MY LIFE: 5 things I deal with every day regarding chronic illness

MY LIFE: 5 things I deal with every day regarding chronic illness

By Jiri Hodan [Public domain], via Wikimedia Commons

By Jiri Hodan [Public domain], via Wikimedia Commons

There are universal truths when you battle a chronic illness, and I’m no different. Not everyone reading this blog is a chronic illness warrior – some are part of a warrior’s support system or even a person looking for information on chronic illness for a variety of reasons. It’s because of this that I decided to write a post about everyday things chronic illness warriors need to understand and deal with.

  1. Sleep is different for me. Other people who don’t battle a chronic illness can yawn and decide it’s bedtime, then go to bed and fall asleep quickly, sleeping through the night. They wake up refreshed and are able to hop out of bed to begin their day. Then there’s my situation. I typically wait until it’s almost guaranteed I can at least fall asleep, but even then I can only count on sleeping four or five hours without waking up.
    Sometimes I can go back to sleep, sometimes I can’t. Because of this, I can’t count on a certain number of hours of sleep every night. I can’t count on my sleep being refreshing. All in all, I can’t count on anything. For instance, last night I slept three hours and thirty-seven minutes. It’s really hard to be productive on so little sleep, I assure you, especially when this happens day after day.
  2. I’ll wake up in pain, but I never know what kind. Most of us with chronic illnesses deal with pain most every day. We all realize that’s a part of our illness. What’s harder to come to terms with is that every day is a surprise, and not in a good way. I can’t ready myself physically or mentally for what will happen, and the pain is like a never-ending rain cloud over my head. Every morning, I wake up and my brain registers where the pain is and what kind. Then I need to decide how to deal with that day’s problems.
  3. My body has betrayed me and continues to do so. It’s incredibly difficult to know your own body is making you miserable and there’s little you can do about it. People without chronic illness/pain can’t even begin to comprehend what this feels like. I’ve done nothing to deserve this. And I can’t go to the doctor or take a pill to get rid of it. Instead, I battle my own body every day and come out on the losing end, which can be incredibly depressing.
  4. Everything I do is based on my illness and how I’m feeling. I can’t make plans or promises because there’s a good chance I won’t be able to fulfill them. Sometimes I have to make plans and hope I feel well enough to follow through on them. I feel undependable and wish things were different. It’s difficult to accept. The idea that I constantly let other people down (even if they tell me they understand), niggles at me day and night.
  5. I can’t realize my dreams. I’m an author. I had an established name before everything started to go wrong. But I’ve hardly released anything in the past two years and readers are forgetting me. My royalties are decreasing every month. To add insult to injury, my medical and other costs associated with my illness increase every month. It’s a vicious, never-ending cycle.

I want to note one thing: I didn’t write this to garner sympathy. My aim was to help people realize the particular challenges chronic illness warriors face. I know it’s impossible for healthy people to understand, but hopefully dealing with chronic illness warriors, combined with this kind of information, will help them help us.

Are there things you deal with every day as a chronic illness warrior that I haven’t mentioned? Tell me in the comments below!

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RECIPE: Gluten-free healthy blueberry muffins

RECIPE: Gluten-free healthy blueberry muffins

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Note: This recipe was originally printed on The Healthy Chef.

Is there anyone out there who doesn’t love a delicious blueberry muffin? And how about if it happened to be gluten-free, protein-rich, etc. Here’s the deal:

Each muffin has just over 7 grams of protein which will help fill you up, keep blood sugars stable and support a healthy metabolism. I’ve made them with almonds which are kind to the digestive system and won’t blow you out. The  rich colour from blueberries comes from anthocyanins that are antioxidants which neutralize free radicals.

INGREDIENTS (makes 12 muffins)

300 g (10 ½ oz/3 cups) almond meal
2 teaspoons gluten-free baking powder or ½ teaspoon baking soda
4 organic eggs
60 ml (2 fl oz/¼ cup) macadamia nut oil, cold pressed coconut oil or extra virgin olive oil
1 teaspoon ground cinnamon
2 tablespoons raw honey, organic maple syrup or a few drops stevia if needed
1 red apple, chopped into small chunks with the skin on
200 g (about one cup, the amount doesn’t have to be spot-on) fresh or frozen blueberries

METHOD

  1. Preheat the oven to 170°C / 300 F.
  2. Combine the almond meal and baking powder in a large mixing bowl.
  3. Add the eggs, oil, cinnamon and honey to form a batter.
  4. Fold in the apple and blueberries.
  5. Divide into paper-lined muffin tins.
  6. Bake for 35–40 minutes until cooked through and golden.

And some bonus information!

For nut free muffins use ¼ cup coconut flour (40 g)  + 2 tablespoons of organic pea protein in place of the 3 cups of almond meal – reduce the baking powder to 1 good teaspoon – reduce the blueberries to 100 g. If the mix looks a little wet – add a touch more coconut flour or Pea Protein. This recipe makes 6 large muffins or 12 cupcake sized muffins.

Hazelnut meal also works really well  with this recipe and marries perfectly with the apple and blueberries.

Let me know how you and your family like these yummy, yummy muffins!

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PRODUCT REVIEW: Naturally Fresh Deodorant Crystals

PRODUCT REVIEW: Naturally Fresh Deodorant Crystals

NOTE: The full name of this product is: Deodorant Crystal Blue Twist Up Stick

 

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Size: 4.25 Oz

From the product description:

The only solid crystal deodorant in the world market with Aloe Vera is free of harmful aluminum contaminants. 100% pure and natural, hypoallergenic, 24 hour protection, not-staining and lasts up to one year. Highly recommended by doctors- oncologists, dermatologists, and allergists. Our elegant deodorant crystal combines all natural ingredients to eliminate odor causing bacteria. Aloe Vera is added to soothe and moisturize shaved underarms. Non-sticky, non-greasy–feels like a luxurious skin lotion.

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Now my view:

I like this deodorant, overall, but there’s one major problem with it. When the weather turns hot, it doesn’t seem to work very well. I switch to another deodorant for a few months and then come back to this one.

The best way to apply the product is to wet it, roll it on, and then let it dry before putting on your shirt. Otherwise, you may end up with wet spots. Be sure you get good coverage on your underarms, as the product makes a kind of barrier against bacteria.

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Also, on a random note, the crystals sometimes fall out of the bottom little by little. I just use a paper towel every few months to mop them up. No biggie, but I thought I should mention it. Some of the reviewers on Amazon mentioned they’ve used it with success on their feet as well but it doesn’t seem to be a universal finding.

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This product does a good job keeping me dry, and I’m especially happy I’m not using a product with aluminum. Because of my background, I’m at a higher risk for breast cancer than most women and recent studies indicate aluminum in deodorant may be causing the large increase in cases of breast cancer. This deodorant can also be used by both men and women. The smell isn’t overly girly, in fact, since it’s fragrance free, there really is no scent.

If you use this or a similar product let me know in the comments how you like it.

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