I just got a beautiful tattoo on the inside of my wrist late last week. Here’s a picture.

Why the butterfly?

From Fibro Daily: Because the impact of Fibromyalgia can be felt in major ways, no matter how small or light. The lightest touch of a butterfly could cause massive repercussions for a Fibromyalgia patient. Most Fibromyalgia patients are women. Hugging your child can cause intense pain.

So what about the purple ribbon in the middle? Does every disease and its brother use a purple ribbon? Well, yes. But here’s why, from Deb Devlin Design:  This color is a symbol of pancreatic cancer, domestic violence, religious tolerance, animal abuse, the victims of 9/11 including the police and firefighters, Crohn’s disease and colitis, Alzheimer’s, rett syndrome, cystic fibrosis, lupus, fibromyalgia & epilepsy, chronic urticaria (hives), Chiari malformation

Why aren’t there any words?

I haven’t decided if they’re necessary, that’s why. If I did get words, I’d love them to be:

Fate said to me: You cannot withstand the storm.
I said: I am the storm.

But that’s an awful lot of words, so who knows?

Let’s get back to why I got the tattoo in the first place. Right off the bat, I should tell you I didn’t do this for anyone else. I did it for me. Even when my flaring is at its worst, my arm is still attached (hopefully) and I can look down on it, remembering that I have a 100% success rate when it comes to getting through these flares.

I wanted something simple, yet beautiful. I think Tom over at Redhouse Tattoos did a great job and I highly recommend him for anyone looking to get ink done.

Do you have a tattoo for personal reasons? Do you talk about it or why you have it? Tell me in the comments section!

Hi everybody! Today I’ve invited my seven year old daughter to talk about what her life is like since I have fibromyalgia. I’m going to ask her questions and then type her answers.

Q: What do you feel like when your mom is in pain?
A: Angry, sad. Not angry at her, angry at the fibro.

Q: What is the biggest change in your life since your mom got diagnosed?
A: I was surprised and sad when she got diagnosed. I knew there would be a change in life for me. That change is that I never got to spend as much time doing fun stuff with her. It’s blown me off my original track because it made a total change in life for me. I was surprised that my mom got diagnosed with it, because she looks totally healthy, but then she explained to me that it’s an invisible disease and then I wondered how it could be a disease because no one can see it. Then she told me she tries not to show the pain. Now I am one year older and I’ve gotten used to it but it still makes me sad.

Q: What’s your favorite thing you can do with your mom that she’s still able to do?
A: Go out to stores and look out, especially in the art sections. I love art and she always tells me how good I am at it and buys me lots of supplies.

Q: What is your least favorite part of your mom having fibro?
A: She has to lay in bed a lot, so I can’t play with her as much as I want to.

Q: Does your mom do anything to try to make up for the fact she’s in bed so much?
A: Yes. She invites me up to her room to watch TV and she’s bought us a ton of adult coloring books, plus colored pencils, markers, and gel pens. We like coloring together.

Q: How does it make you feel if you do something special together?
A: Really good, but I still know she has fibro so that makes it so it can’t be perfect.

Q: What are good clues that tell you whether your mom is feeling well or bad?
A: Well – My mom doesn’t have eyes that are half-closed. Also, she’s not in bed.
Bad – When she tells me she has to go to sleep – that she doesn’t have any choice. Also, when she takes a bath with epsom salts.

Q: Do you sometimes see your mom crashing before she sees it or you know she’s pushing and will be flaring later?
A: Yes, because she has to sit more, or because she falls asleep while we’re coloring.

Q: What does it feel like when mom isn’t available because she’s resting or flaring?
A: I feel sad, but not as bad as I used to feel because I’m used to it now. Plus, sometimes I spend the day with my dad and that’s usually cool.

Q: Are there any things you know your mother shouldn’t do and so you try to help?
A: Sometimes I see something that has to be done and I tell her I’ll help or I’ll do it for her.

Q: If you could take away all her pain and tiredness for one day, what would you want to do?
A: As much as we could do. Go get ice cream, go to the playground, take a bike ride, just be with her without worrying.

Q: Do you feel like you’re missing out on anything because your mom has fibro?
A: Not really. I know I’m still very lucky and my parents love me a lot.

That’s about it for the small person. It’s time for bed! If you have any questions for her, leave them in the comments and I’ll show them to her.

These are some of my daughter’s favorite markers for coloring with!

Fibro Fog: A type of cognitive dysfunction reported by many people with fibromyalgia. Also sometimes referred to as brain fog, its symptoms include difficulty with concentration, memory deficits, and confusion. The reason for the changes in brain function with fibromyalgia is not clearly understood.
www.medicinenet.com/script/main/art.asp?articlekey=125458

Fibro Fog is something everyone with fibromyalgia suffers from time to time, at the very least. In addition, people with other invisible illnesses like lupus, MS, RA experience it too. The last sentence in the definition above, that the reasons for fibro fog cannot be understood, is vital. Like many components of invisible, chronic illness, since no one knows exactly what it is or what causes it, they can’t stop it. They can only minimize the effects of it. One effect is fibro fog, and hopefully you’ll find some good tips to deal with it.

Yeah, this is pretty realistic…

So how does someone living with it make things better?

• Do tasks that don’t require intense concentration. Cleaning, laundry, taking a walk, doing some organization of a space you use that’s gotten out of control. I am addicted to these collapsible organizers. They’re all over our house! And if I don’t need an organizer for some reason, it folds right up.
• Rest. In my experience, fibro fog happens most when you’ve been doing too much. Whether that means a nap, a bath, reading – do whatever appeals to you the most. If you’re going to take a bath, you might as well make it a detox bath. All you need is a handful each of baking soda, magnesium flakes (or if those bother you, epsom salts), and some essential oils if you like them.
  I use lavender. Others use peppermint to really sweat out the toxins, but if you’re going for relaxation, lavender is a better choice. By the way, the link for the magnesium flakes says to use the entire bag for one bath. Maybe that’s why some people report a tingling sensation. I think that’s overkill, but you do what you think is best.
• Use your phone’s calendar and memo apps. I put an appt in my calendar as soon as it’s made – like actually standing there at the reception desk and typing it in. Make sure you put reminders in. I use an hour before and a day before. I also copy my husband so he knows where I’m supposed to be.
• Make routines. I have a designated spot for my purse and a hook for my keys right inside the door from the garage. I put my keys on that hook as soon as I enter, so I know that next time I need them I won’t have to search for them.
• Stop it with the multi-tasking. It will only make the problem worse. Women are hard-wired to multi-task, but when fibro fog sets in you simply can’t. If that means you don’t make dinner because you had to fill out registration forms for your kid’s summer camp, so be it. And don’t let anyone make you feel guilty about it. In this day and age of microwaves and drive-thrus, no one should starve. I keep a lot of food in the house so if I don’t feel well, hubs can make himself and our daughter a meal if need be.
• Eat as healthy as you can and drink water. This seems like a “duh” thing, but I know when I’m experiencing fibro fog I can’t make a decision about what food I want, much less get up and make it or swing through a drive-thru. Places with a drive-thru are your friend. I just finished a salad from Panera Bread. 660 calories of real food – good food, like avocados and chicken and hard-boiled eggs.
• Watch your meds and their effect on you. It’s possible your dosage needs to be tweaked in order to prevent some of these issues. Don’t take it for granted that the amount you take of any med is the right dosage. Doctors are not perfect. You may have to insist on a dosage, but you know your body better than anyone else.
• Use those small bursts of energy to do things that require intense thought or multi-tasking. Understand, though, that you’re probably done for the day after that. Set expectations with your spouse and children so they know you’re going to need a nap or to chill in front of the TV.
• Make sure your environment isn’t contributing to your problems. When I got diagnosed with fibromyalgia, I started systematically eliminating chemicals from our house. All of the 409/Windex-type products were replaced by a vinegar citrus cleaner. Our dishwasher detergent and various laundry products are also completely organic. I believe there are recipes for at least some of those things in a prior post.
• If you like this sort of thing, do things that stimulate your brain. Crossword puzzles, word searches, Words with Friends, or any other fun activity that keeps your brain engaged but doesn’t require the same kind of thinking that leads to fibro fog are your best choices.
  I color. I am obsessed with adult coloring books. These are my favorite ones, and I own no less than ten different books. I have found these are the best colored pencils, fine-tipped markers, and gel pens. I can use whatever I want depending on my mood. It may seem like a lot of writing utensils, but trust me, when you color every day like I do you get bored with sets of 12. I even have metallics in all of these.
  When the pain gets too bad or I’m too tired to do anything else, I pull out one of my books and color. Because the pictures are so complex, you have to concentrate on them, but again, it’s not the sort of brain work that would throw you into an episode of fibro fog. They really help with the pain, too, because you’re thinking about the picture, not how much you’re hurting.
• Take a look at the over-the-counter (OTC) supplements you’re taking. Are you getting enough magnesium, a well-know deficiency in fibro patients? What about vitamin D? B12? There’s a huge list of supplements you can take, and some do seem to help with fibro fog. Try some out and see if they work for you. A word of caution: many manufacturers make supplements specifically to help with fibro fog. However, look closely at their ingredients. Many are just a compilation of things you already take.
  Suggestions:
  – Omega-3 fatty acids, whether from real food like salmon or supplements. This is the brand we use.
  – Stevia, when used as a sweetener in place of pretty much every other sweetener. Stevia helps regulate your blood sugar. These are the little packets, they also have liquid, which is very popular too.
  – Vitamins B, C, and D – hopefully a good multi-vitamin would take care of these needs, but you might need to supplement, especially Vitamin D, which fibro patients are almost always low on.

Wow, that was a lot of information. Sorry about that, but I wanted to be sure I was covering everything I could think of for how to fight back against fibro fog. You *can* do it. If nothing else, say to yourself, “You survived through this before, you’ll survive now. You’re okay, and you don’t have to be perfect.”

Do you have any other ways of coping with fibro fog? Tell me in the comments section!

Health Enterprises Acu-Life Deluxe Pill Organizer – I use one of these to keep my meds organized. When FibroFog hits, I don’t have to worry about losing track of my meds.